Here we have collected support groups information throughout the UK in the hope that it will enable you to have all of them at your finger tips. We would welcome your group’s information if we have not listed it or if we have the incorrect information, so that we may correct it.
National Support Organisations
Name of Organisation |
Telephone Number |
Web – Site |
Email Address |
|
The ileostomy & Internal Pouch Support Group |
08000184724 | www.iasupport.org | iinfo@iasupport.org |
| Urostomy Association | 01386430140 | www.urostomyassociation.org.uk | secretary@urostomyassociation.org.uk |
| Colostomy Association | 08003284257 | www.colostomyassociation.org.uk | cass@colostomyassociation.org.uk |
| Junior Ostomy Association |
via CA 08003284257 |
www.colostomyassociation.org.uk | cass@colostomyassociation.org.uk |
| Mitrofanoff Support | 01202674336 | www.mitrofanoffsupport.org.uk | info@mitrofanoffsupport.org.uk |
| Breakaway Foundation | 01283240253 | www.breakawayfoundation.org.uk | info@breakawayfoundation.org.uk |
| International Ostomy Association | www.ostomyinternational.org |
Support Organisations for Associated Medical Conditions
Organisation |
Telephone Number |
Web – Site Address |
Email Address |
| Beating Bowel Cancer UK | 02089730000 | www.beatingbowelcancer.org | |
| Bowel Cancer UK | 02079401760 | www.bowelcanceruk.org | admin@bowelcanceruk.org.uk |
| Macmillan Cancer Support | 08088080000 | www.macmillan.org.uk | |
| Crohn’s & Colitis UK | 03002225700 | www.crohnsandcolitis.org.uk | info@crohnsandcolitis.org.uk |
| The IBS Network | 01142723253 | www.theibsnetwork.org | info@theibsnetwork.org |
Local Support Groups
in your area
Area |
Organisation |
Contact |
Telephone Number |
Web-site |
Email Address |
Scotland |
|||||
| Ayrshire |
Ayrshire & Arran Stoma Support Group |
Jim Krasewitz | 01292220945 | ||
| Stoma Care and Recovery (SCAR) |
Maggie or Rhona |
01294271060/07817736147 01294557478 |
maggie13@sky.com | ||
| Fife | Fife Ostomy Support Group | Ishbel Barr | 01592772200 | ||
| Lothian & Fife UA | Ms Rhona McLaughlin | 01314474323 | |||
| Fife IA | Mrs Betty McNeil | 01383416320 | betty.mcneil@talktalk.net | ||
| Lanarkshire | G66 Support Group | Les Ireland | 01417763866 | ||
| Glasgow Stoma Support Group | Morag Sinclair or Jackie McChesney |
01417791322 01505324052 |
|||
| Moray | Moray Ostomates Support Group |
Maggie or Kathleen |
01343552449 07789684285 |
||
| Scottish Borders | Stoma Support Group |
Nancy Fraser or Fiona Gentleman |
01450374012 01450371063 |
||
| West Lothian | GOSH (West Lothian) | Scott Pattison | 0752163644 | ||
| Dumfries & Galloway | Dumfries & Galloway IA | Derek Oliphant | |||
| East Scotland | East Scotland IA | Mrs Tracy Meighan | 01313348533 | eastofscotland@iasupport.org | |
| Highland | Highland IA | Kirsty Mackenzie | 07770640636 | highlandia@iasupport.org | |
| North Scotland | North Scotland IA | Ms Sarah Henny | 01467626002 | northofscotland@iasupport.org | |
| West & Central Scotland | West & Central Scotland IA | Mrs Jacqui O’Donnell | 01389604449 | wcscotlandia@iasupport.org | |
| Tayside | Tayside IA | Miss Mary Smith | 013282827883 | marysmith@blueyounder.co.uk | |
Wales |
|||||
| Bridgend | Bridgend Ostomy Patients Support Group | Anita Brankley | 01656645602 | bridgend.ostomy@gmail.com | |
| Carmarthenshire | Canarthenshire Support Group | Iris Williams | Iris.Williams@wales.nhs.uk | ||
| Denbrighshire | Noerth Wales Ostomy Support Group |
Debi Devine Hazel Duke |
07876762503 07976817246 |
devinetherapies@btinternet.com | |
| Flintshire | Bag for Life Stoma Support Group In It Together | Faye Jones | 07852750772 | ||
| Gwent | Blaenau Gwent Self Help | Celia McKelvie |
0183852672 After 6pm |
||
| Cwmbran Ostomy Support Group | Philippa Lewis |
01633791339 07504713069 |
|||
| Mid Glamorgan | CASS Colorectal & Stoma Support Group | Colorectal Nurse Team | 01685728205 | ||
| Pembrokeshire | PSA (Pembrokeshire Stoma Association) | Roy Whitfield | 0143776070 | ||
| Powys | The Bracken Trust Cancer | Helen Davies | 01597823646 | ||
| Rhondda Cynon Taf | Royal Glamorgan Stoma Care Support Group | Domenica Lear | 01443443053 | ||
| Swansea | Swansea Ostomy Self Help Group | Glynis Jenkins | 01792418245 | ||
| North Wales | North Wales IA | Mrs Shan Davies | 01352735550 | northwales@iasupport.org | |
| South Wales | South Wales IA | Rhys Price | 02920341833 | south.wales@iasupport.org | |
| Shropshire, Wales & the Marches | Shropshire, Wales & the Marches UA | Mrs Toni Haines | 01952400971 | toni.h@blueyonder.co.uk | |
Northern Ireland |
|||||
| Co. Antrim | Colostomy Association Volunteers Northern Ireland | Chris Wright | 07720717771 | ||
| Mater Hospital | Karen Boyd Stoma Nurse | 02890741211 Ext 2329 | |||
| Royal Victoria Hospital Belfast |
Sarah Haughey Audrey Steel |
02890240503 Ext 3483 | |||
| Co. Armagh | Craigavon Area HOspital |
Mary Jo Bernie |
02838612721 | ||
| Dasy Hill Hospital Support Group | Bernie Trainor | 020830835000 Ext 2222 | |||
| Co. Down | NorthDown Stoma Support Group | Adrian Ewing | 07850741511 | ||
| Ulster Hospital |
Hazel Martina |
02890550498 | |||
| Londonderry | Causeway Support Group | Mary Kane | 02870346264 | ||
| Northern Ireland | Northern Ireland IA | Mrs Jenny McMillen | 02893038063 | nireland@iasupport.org | |
Republic of Ireland |
|||||
| Co. Mayo | Mayo Stoma Support | Marion Martyn | 0949021733 | ||
| Dublin | Bowel Cancer Support Group |
National Cancer Helpline or Olwyn Ryan |
003531800200700 0035312310500 |
||
| Ireland IA | Ms Cepta Burke | 0599131005 | cepta@iasupport.org | ||
Channel Islands |
|||||
| Guernsey | Guernsey Ostomates | Luci Deane | 01481236077 | lucidedeane58@gmail.com | |
England |
|||||
| Bedfordshire | Saturday Social Club | Karen Richards | 01234792278 | ||
| Northampton IA | Ms Cindy Baily | 01604581804 | |||
| Berkshire | East Berkshire Ostomy Club | Jackie Dudley | 01344426652 | ||
| Reading Bowel Cancer Support Group | Ted Wingrove |
01189618297 or 07974790558 |
|||
| West Berkshire Ostomy Club | Jackie Dudley | 01344426652 | |||
| Bristol | Bristol Ostomy Self Support |
Janet Rob |
01934248114 01179668021 |
||
| dave.simonds@urostomyassociation.org.uk | |||||
| Avon | Avon IA | Mr Kerr Brown | 0145883309 | www.avon.iasupport.org | avon@iasupport.org |
| Buckinghamshire | High Wycombe Stoma Support Group | Jill Bailey | 07909255586 | ||
| Berks, Bucks & Oxen | Berks, Bucks & Oxen IA | Mr Scott Clifford | 01235364164 | www.bbo.iasupport.org | bbo@iasupport.org |
| Milton Keynes Stoma Association | Thia Cooper | 01908679295 | mksa.sec@gmail.com | ||
| Cambridgeshire | Connections Cancer & Colostomy Group |
Bev Sue Scott Barbara Hunt |
01353860356 07766958811 01353862133 |
||
| Cambridge UA | Helen Woolley | 07826736308 | helen239@hotmail.com | ||
| Peterborough Stoma Support Group Ostomistics | Alan Wright |
01354653290 07836661102 |
|||
| Cheshire | Countess of Chester Hospital Stoma Support Group | Stoma Nurses | 01244366170 | ||
| Stockport Support Group | Angela Simpson |
01613209400 08006526667 |
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| Stoma Support Group | Catherine McIntosh | 01477535071 | |||
| Warrington Ostomy Support Group | Jane Shaw | 01925662103 | |||
| Cleveland | Ooops Group | Julia Morrisroe Carol Younger | 01287284113 | ||
| Co Durham | Bishop Auckland Stoma Care Group | Betty | 01388814535 | pgill82171@aol.com | |
| North Eastern IA | Claire Wilson | 01915863520 | www.northeastern.iasupport.org | northeastern@iasupport.org | |
| Darlington Support Group | Sister Jacqui Atkinson | 01325743005 | |||
| Durham Stoma Support Group | Katie | 01913332184 | |||
| Newcastle Upon Tyne UA | Mrs E M Spraggon | 01912851667 | eileen.spraggon888@btinternet.com | ||
| East Anglia | East Anglia UA | Charles Powles | 01493720096 | ||
| Cornwall | Cornwall & Plymouth Bowel Cancer Support Group | Keith Anderson | 01822258618 | www.cornwall-bowel-cancer-support-group.co | cbcsginfo@gmail.com |
| Cornwall Ostomy Support | Ken Jones | 01872863106 | www.cornwallostomysupport.org.uk | ||
| Ostomist & Carers Support Group |
Christine Davey or Mandy Rowe |
016370850895 01726832642 |
chris.davey28@gmail.com | ||
| Cornwall | Cornwall IA | Mrs Barbara Trenerry | 0172674942 | www.cornwall.iasupport.org | cornwall@iasupport.org |
| Cumbria | Grange Cancer Support Drop in | Marie | 01539533279 | ||
| Derbyshire | Diverted Local Stoma Support Group | Diane Manning | 01283541311 | ||
| Devon | Devon IA | Martin Hornby | 01458251095 | devon@iasupport.org | |
| Mid Devon Ostomy Support Group | Janice | 07923975051 | jdkelly234@gmail.com | ||
| Devon & Somerset | Devon & Somerset IA | Martin Hornby | 01458251095 | www.devon.iasupport.org | devon@iasupport.org |
| Dorset |
Colostomy Urostomy Pouch Ileostomy of Dorset (CUPID) Bournemouth |
Beryl Andrews | 01202483303 | ||
|
CUPID Poole |
Jenny Pipe | 01202740440 | |||
|
CUPID West Dorset |
Colin Clare | 01305853238 | |||
| East Midlands | Newhall Stoma Support Group |
Diane Manning Helena |
01283541311 07932331850 |
||
| Essex | Connect | Lin Hart | 01279505273 | ||
| Mid Essex Stoma Support Group |
Paul Foulger Janet Johnson |
01245224374 01376511862 |
|||
| merw@hotmail.co.uk | |||||
| North Essex Stoma Support | Brian Waller | 01206540449 | |||
| Optimistic Ostomates | Carol Booth or Angela Taylor |
01702385510 01702385509 |
|||
| Redbridge Ostomists Club |
Stoma Nurses Chris / Lisa |
02089708321 | |||
| STEPS | Jackie | 01268451937 | stepsessex@gmail.com | ||
| Glocestershire | Ladies Big Op Group | Gill Hopkins | 03004224363 |
Please Note For ladies with one or two permanent stomas |
|
| Cotswolds UA | 01386430140 | dave.simonds@urostomyassociation.org.uk | |||
| Three Counties IA | Kate Watson | 01684772667 | www.threecounties.iasupport.org | threecountiesia@iasupport.org | |
| Vale Stoma Support Group |
text 07941827393 |
jfn.dursley@gmail.com | |||
| Hampshire | Solent Ostomates Support Group (New Forest Branch) | Ron Lever | 02380893949 | rdlever@sky.com | |
| Hampshire & IOW | Hampshire & IOW IA | Ronald Linsley | 02380485959 | www.hants.iasupport.org | hantsiow@iasupport.org |
| Solent Ostomates Support Group | Carole Summer | 07527707069 | |||
| Southern Ostomy Group | Caroline or Karen | 07756819291 | southernostomygroup@hotmail.com | ||
| Wessex Urology Support Group | sAdrian Kuczynzki | 07910786978 | |||
| Herefordshire | Herefordshire Stoma Support Group | Carol Steele | 01432880656 | carolsteeleglo@gmail.com | |
| Hertfordshire | Colonise | Anastasia | 01727760981 | ||
| Peterborough & Wisbech IA | Mrs Norma Jennings | 01462618643 | www.peterborough.iasupport.org | peterborough@iasupport.org | |
| Stevenage Ostomistics |
Judy Colston Alfred |
01438354018 01767316958 |
neilcolston@btinternet.com | ||
| Isle of Man | IOM Bowel Cancer Patient & Carer Group | Heather Norman | 07624480973 | ||
| Stoma Support Group | Carole Cringle Stoma Nurse | 01624650212 | |||
| Isle of Wight | Optomistics | Andie Coates Amanda Broadbridge | 01983534009 | ||
| Semi-Colon Club | Tony Crowson Cancer Clinical Nurse |
01983559326 01983534180 |
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| Kent | Ashford Stoma Support Group | Carole Hobbs Margaret Web |
01303814014 01233628807 |
||
| Kent | Kent IA | Mrs Mavis Prior | 01795843507 | ||
| Atoms Support Group | Maria Culleton SCN |
01227769679 07827997424 |
|||
| Dartford Ostomy Group Support | Tracy, John, Sue | 07948974350 | dogs-uk@hotmail.com | ||
| Dover Stoma Friends Group Support | Julie Bell Ros Marshall June Golding |
07771345703 01304822696 01304822696 |
|||
| Churchill UA | 01386430140 | ||||
| Medway Ostomy Group | Helen or Tracy | 07773605534 | |||
| Maidstone Stoma Support Group | Judy or Kirsty | 01622224305 | |||
| Royal Tunbridge Bowel Cancer Support Group | Bronwen Tetley CNS | 01892526111 Ext 2287 | |||
| Sheppey Ostomy Group Support | Shelly | 07714734194 | sogs-uk@hotmail.com | ||
| Swan Stoma Support Group | Heather | 07711445312 | |||
| Thanet Stoma Buddies Support Group | Phil | 01843587769 | |||
| Kettering & District | Kettering & District IA | Roy Presland | 01933314831 | www.kettering.iasupport.org | |
| Lancashire | North Manchester & Bury Stoma Support Group | Julia Meadows SCN |
01617202815 07841206910 |
||
| Wiigan IA | Anthony Beahan | 01704894580 | |||
| North West Lancs & Cumbria IA | Keith Woan | 01257278759 | www.nwlancs.iasupport.org | nwlancs@iasupport.org | |
| Manchester | Manchester IA | Mrs Marlene Evans | 01617909380 | secretary@ia-manchester.com | |
| Manchester & NW UA | 01386430140 | ||||
| Humberside | Humberside IA | Mrs Ann Sharpe | 01482666265 | www.humberside.iasupport.org | humberside@iasupport.org |
| Oldham Stoma Support | June Wilde | 01613125538 | |||
| Phoenix Bowel Cancer Support Group | Sandra Nicola | 01253291919 | www.phoenixgroupbvh.com | phoenixbvh@aol.com | |
| Trafford Bowel Care | Jackie Carey Doreen John |
01617489659 01619627818 01617484655 |
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| Leicestershire | Kirby Ostomy Support Group Colostomy, Ileostomy & Urostomy | Janet Cooper | 01162392844 | kosg2013@btinternet.com | |
| Leicestershire IA | Alan West | 01162601689 | www.leics.iasupport.org | LeicestershireIAsecretary@iasupport.org | |
| Leicester UA | 01386430140 | ||||
| Linconshire | Friends East Coast Support Group |
Betty Sheila |
01205724120 01205364493 |
||
| Linconshire IA | Paul Pyrah | 01522820154 | www.lincs.iasupport.org | paulpyrah@linconshireia.com | |
| Grantham Support Group | Bobbie Rachel | 01476464822 | |||
|
Sutton Bridge & Long Sutton Ostomy Group
|
01406351617 | ||||
| London | Bowel Cancer Newham | Scyana | 02085535366 | scyana@tiscali.co.uk | |
| East London | East London IA | Trevor Bason | 01702586779 | www.eastlondon.iasupport.org | eastlondon@iasupport.org |
| ESSence Ealing Stoma Support Group | Wendy Hetherington | 07717335884 | |||
| Greater London West | Greater London West IA | Michelle Cummins | 07736811911 | www.iaglw.org | secretary@iaglw.org |
| Homerton Hospital Bowel & Stoma Support Group | Angela Davy |
02085105318 02085107599 |
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| North London | North London IA | Julia Spanswick | 01727861496 | www.nlondon.iasupport.org | nlondon@iasupport.org |
| Rectangle – Colorectal Cancer Support Group | Regina Raymond | 02074726299 | |||
| South Woodford Support Group | Nurse Christina Lisa | 02085356563 | |||
| St Thomas Hospital | CNS | 02071885918 | |||
| South East London & West Kent | Mrs Marion Maaidment | 01322224829 | www.selondon.iasupport.org | selwk@iasupport.org | |
| Surrey & South London Bowel Cancer Support Group |
Sue Berry John Amos |
01737553134 02086680796 |
|||
| London South West UA | 01386430140 | ||||
| Merseyside | ICUPS | SCN | 01516047399 | ||
| Merseyside IA | Nigel Morley | 01744614341 | www.merseyside.iasupport.org | nigel.morley@iasupport.org | |
| St Helens Cancer Support Group |
Office Denys Floyd |
0174421831 01744884097 |
contact@sthelenscancersupportgroup.org | ||
| Middlesex | Inside Out Stoma Support Group | Bob |
02084284242 07777667367 |
www.iossg.org.uk | info@iossg.org.uk |
| Norfolk | Kings Lynn Ostomy Friendship Support Group | For Info please call |
01553775698 01553674962 01553768271 |
||
| Norfolk & Suffolk IA | 08000184724 | www.norfolk.iasupport.org | |||
| Stars & Reconstruction Surgery Social Support Group | Sylvia Hughes | 01263733448 | sylvia.ruth.hughes@gmail.com | ||
| Northumberland | Berwick Ostomy Support Group | Bobbie Minshull | 07714479320 | ||
| Hexham Ostomy Group | Judith | 07967927286 | |||
| Northumberland Cancer Support | members@northumberlandcancersupportgroup.co.uk | ||||
| Nottinghamshire | North Notts Stoma Support Group | Tore & Nicky Norman | 01773715460 | ||
| Nottinghamshire & Derbyshire IA | Pete Lord | 01773764865 | www.notts.iasupport.org | secretary@nottinghamshire-ia.org.uk | |
| Nottingham QMC Stoma Support Group | Rosemary Brierley | 01159826691 | |||
| Nottingham Stoma Support |
Jenny or Kate Mrs B Heath |
01159627736 01159663073 |
|||
| Oxfordshire | Oxfordshire Ostomy Fellowship | Pat Longworth | 01235524163 | ||
| Sheffield | Sheffield & District UA | 01386430140 | |||
| Shropshire | Bums on Tums | Irene Constable | 01691238357 | ||
| Shropshire & District IA | Dan Campbell | 07591285881 | daniel.campbell@iasupport.org | ||
| Staffordshire | Outlook | Moira Hammond | 07788402195 | ||
| North Midlands | Mrs Julie Viacos | 01705817901 | julie.viacos@iasupport.org | ||
| Suffolk | East Suffolk Ostomy Group | Marion Fisher | 01493663363 | ||
| James Pagett Ostomy Support Group | Sandra Hutchings |
01502585955 Evenings Meetings |
|||
| James Pagett Ostomy Support Group | Vicki Blackwell |
01493663363 Afternoon Meetings |
|||
| West Suffolk & District Stoma Group | Jessica Pitt SCN | 01638515525 | |||
| Surrey | Epson & Distict Stoma Support Group | Lindsay Trevor Sheena | 01372735925 | ||
| Surrey IA | Mrs Cecillia Humphrey | 01483476235 | www.surrey.iasupport.org | surrey@iasupport.org | |
| Normandy Colostomy Support Group | Marina Harkins |
01483233126 07852554049 |
|||
| Surrey UA | 01386430140 | ||||
| Stoma Support Group | Robin Young | 01428723255 | |||
| Sussex | Brighton & District Support after Stomas | Sylvia Bottomley | 01273554407 | ||
| Sussex IA | David Drakeley | 01293409379 | www.sussex.iasupport.org | david.drakeley@iasupport.org | |
| Chichester Stoma Support Group | The Stoma Care Team | 01243831527 | |||
| The Ostomy Friends Group | Jane Quigley | 01323417400 Ext 4552 | |||
| West Sussex Princess Royal Stoma Support | Tina Walker | 01444441881 Ext 8318 | |||
| Tyne & Wear | Gateshead Stoma Patient & Care Support Group | SCN | 01914453152 | stuart.sutcliffe81@yahoo.com | |
| NHS Molineaux Centre | Gordon Weatherburn | 01912341109 | |||
| Royal Victoria Infirmary Support Group | Gordon Weatherburn | 01912341109 | |||
| Warwickshire | Warwickshire Stoma Support Group | nuneatonstoma@aol.com | |||
| Birmingham | Birmingham IA | Ms Mary Cotterill | 01213543903 | ||
| Birmingham UA | 01386430140 | ||||
| West Midlands | Coventry Stoma Support | Martin | 07947385643 | ||
| Sandwell & Walsall IA | Ms Susan Bond | 01922477559 | davidbond@dbond46.fsnet.co.uk | ||
| Coventry | Coventry IA | Mrs Carole Hill | 01214295600 | www.coventry.iasupport.org | secretary.coventry@iasupport.org |
| Wiltshire | Swindon IA | Martin Brien | 01793532776 | www.swindon-ia.org.uk | secretary@swindon-ia.org.uk |
| Wessex Stoma Support Group | Michael Slater | 01722741233 | www.birmingham.iasupport.org | birmingham@iasupport.org | |
| Worcestershire | Kidderminster & District Collossus Support Group | Brendon Drew | 01299400843 | ||
| Stourbridge IA | Mrs Lorraine Cadwallader | 01562755630 | www.stourbridge.iasupport.org | stourbridge@iasupport.org | |
| Yorkshire | Acorn Ostomy Support Group | Michelle |
07580693155 (After 6:00pm) |
||
| Yorkshire & Humberside UA | 01386430140 | ||||
| Sheffield & Rotherham IA | Ms Sue Pollard | 01142463105 | |||
| Airedale Stoma Support | Sue Hall | 01535210483 | |||
| Barnsley Bottoms Up Stoma Support Group |
SCN Celia Utley |
01226432528 01226284262 |
|||
| Behind You (Calderdale & Huddersfield Bowel Cancer Support Group | SCN | 01484355062 | |||
| Dewsbury & District Ostomy | Janet Edmond |
01924512041 01924512072 |
|||
| Leeds Bowel Cancer Support Group | Lynda Castle CNS | 01132065535 | |||
| Scarborough Stoma Support Group | Sister Jean Campbell Amanda Rowe |
01723342388 01723342446 |
|||
| The Hull & East Riding Colostomy Support Group | Peter Smith Pete Rennard Rosanna Grimsby |
07989565335 07939518642 /01482793966 01482801575 |
www.hercosg.org.uk | ||