Other Support Organisations

On this page we have put other support organisations, Government and Non Government help sites, that you may find helpful to you the ostomist and your family during the time of need and to keep you informed and up to date with any new changes..

 

Cancer

Beating Bowel Cancer Awareness, Education and Support
Bowel Cancer UK Advisory Service
Cancer Research UK Easy to understand patient information on today’s research 
Macmillan Cancer Support Information and Support for all the people affected by cancer
Penny Brohn Helping people to live with cancer

Crohn’s Disease and Ulcerative Colitis (IBD) Inflammatory Bowel Disease

 Crohn’s Zone An Interactive forum based online community for all over the world
CICRA Crohn’s in Childhood Research Association Support for suffers and their families 
 Crohn’s and Colitis UK Support for sufferers and their families

Diverticular Disease

Bladder and Bowel Foundation Dedicated section for people suffering from diverticular disease
 Core Charity provides an insight to the on going research and information of diverticular disease

IBS Irritable Bowel Syndrome

IBS Network National Charity supporting people living with irritable bowel syndrome
 Core Charity provides an insight to the on going research and information of IBS

Incontinence

Bladder and Bowel Foundation Dedicated section for people suffering from incontinence
Mitrofanoff Support Provides emotional support, reassurance, networking and information on bladder issues

 Hirschsprung’s Disease

Core Charity provides an insight to the on going research & information of Hirschsprung’s disease
NORD National Organisation for Rare Disorders has information on Hirschsprung’s disease
HMDSN Hirschsprung and Mobility Disorders Support Network has information for parents 
REACH Committed to improve the lives of Children and their families who suffer with Hirschsprung’s Disease

Hernia

The British Hernia Centre this site covers all forms of hernia’s including stoma hernias (parastomal) 

National & International Organisations

 EOA European Ostomy Association
GLO Gay & Lesbian Ostomates
IA The Ileostomy & Internal Pouch Support Group
CA Colostomy Association
UA Urostomy Association
Red Lion Group Internal Pouch Support Group
Mitrofanoff Support Group Internal bladder pouch support group
IOA International Ostomy Association
Living With A Stoma Comprehensive guide and information on stoma lifestyle issues
UOAA United Ostomy Association of America 
EOS Expatriates Ostomates of Spain
Liga de Ostomizados de Portugal Ostomy Organisation in Portugal (right click on site and click on translation)
Love Your Gut Raising awareness of good gut health 
Sexual Advice Association A professionally staffed confidential helpline

Advice and Support

PALS Patient Advice and Liaison Service (put your post code and it will find the one nearest you)
 Healthwatch England Healthwatch is part of your local community and provide support 
Patient UK Provides comprehensive health information as provided by GP’s and nurses to patients during consultations
Patients Association Patients Helpline to answer queries and concerns you may have with the health care system 
The National Counselling Society Find a Counselor in your area
Samaritans put your post code to find the nearest to you 
Citizens Advice to find the nearest to you put your post code
Carers UK For Support to you as a carer
Benefit Enquiry Line Benefit Enquiry Line provides advice, information on benefits
Disclaimer:

 

The Inside Out Stoma Support Group (IOSSG) has no control over the content of any external links. The display, description or demonstration of products and services on this page or within this site does not constitute or endorsement or recommendation of these products or services by Inside Out Stoma Support Group.